Action on Disability within Ethnic Communities
ADEC Newsletter
Summer 1997
A Biannual Publication of
Action on Disability within Ethnic Communities (ADEC)
13 Munro Street,
Coburg 3058 Vic
Australia.
Telephone (03) 9383 5566
Fax (03) 9383 5185
E-mail: info@adec.org.au
Contents
From the desk of the Executive Director
1996 ADEC ANNUAL GENERAL MEETING
The 1996 ADEC AGM, & ADEC Honours
HACC Training, Resource & Information Project
Client Information & Referral Record (CIARR) - Research
Victoria's Carer Initiatives
Cockatoo Community Health Centre
Mental Health Information Needs
Corporate Training and Consultancies
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A NEW LOGO - A NEW BEGINNING
I take this opportunity to wish everyone health and prosperity in 1997, a year that we hope will further expand the operations of ADEC into the 21st century.
Our new logo is not merely a catchy piece of art. It has some very interesting symbolism; Graphic Artist Jo Patton says she was inspired by the following:
"The oval suggests community; the border of the oval, being of varying thickness, suggests fluidity and diversity, indicating the differences of disability, triangle, square and diamond are representative of the myriad of cultures and ethnicities in Australia; the shapes projecting out, suggest action, and it is for action that ADEC is renowned."
We have moved to better, bigger and more accessible premises in Coburg. If you're in the area, please drop in for a cuppa, a bit of a chat and a look around.
I hope you enjoy reading this edition of ADEC NEWS as much as we have in preparing it.
Regards,
Gabriel Maligeorges (Executive Director)
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ADEC conducted its Annual General Meeting on the night of Thursday 27th of November, 1996. The Annual General Meeting proved to be a highly successful function with approximately sixty people in attendance. New Committee members selected during the course of the AGM include: Ms Fran Draycott of Prahran Aged Psychiatry Unit and Ms Francis McKay Coordinator of the Cottage Early Intervention Program.
We welcome both Fran and Francis to the Committee of Management.
Members of the Committee serving the second year of their term include:
- Mr George Bisas, Chairperson
- Ms Helen Patsikatheodorou, Secretary
- Mr Lucio Naccarella, Treasurer
- Mrs Leila Elguindy and
- Ms Maree Ivey.
We say farewell to Ms Maria Cesarello who was not able to renominate to the Board due to work commitments and welcome Mr Eddie Sciberras to the position of President. There are still two vacancies to the Board which shall be filled following a process of co-option. The Board looks forward to a full and productive term during 1997.
George Bisas, Chairperson.
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At our annual general meeting held on Thursday the 27th of November, 1996, ADEC undertook to recognise the contributions of three people who have significantly assisted in the development of the organisation over the last ten years.
Honorary life memberships were bestowed upon:
Ms Effie Meehan
Ms Maria Cesarello and
Mr Bernie Leeman
by the ADEC membership at the AGM.
Ms Effie Meehan was acknowledged for her contribution to ADEC as the Chairperson over a five year period. Effie was a foundation committee member of ADEC and spent many hours of her time in supporting the development of the organisation.
Ms Maria Cesarello was also acknowledged for her long term contribution to the development of ADEC. Maria was Chairperson of ADEC for a five year period and President for one. Maria represented ADEC on a number of significant committees including the Victorian Minister for Community Services Advisory Committee and the Australian Disability Consultative Council. Maria has recently resigned from her position on the ADEC Committee of Management and will be sorely missed by both staff and other members of the Committee.
Mr Bernie Leeman was acknowledged as the person who was responsible for the original submission which funded ADEC. Bernie, in undertaking significant community development work, was able to bring together a group of carers and people with disabilities to develop the idea of ADEC and bring this to a reality.
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The HACC funded "Training and Information Project" was funded to assist mainstream HACC services to develop access and equity strategies and planning initiatives and to facilitate use of HACC services by NESB communities.
The project provided training, resourcing and information to Home & Community Care Programs within eight rural and metropolitan Human Service Regions in Victoria. These included: Barwon, Gippsland, Grampians, Hume, Loddon Mallee, Northern, Southern, Western and Southern Metropolitan Regions.
Training and planning programs were targeted both to HACC direct care staff and to management staff.
The three training program modules which were developed and offered included:
1. Cross Cultural Training:
These training programs targeted direct care staff and learning areas included; Culture; Language services; Effective communication; Ethnic community profiles for local areas.
2. Multicultural Access Training:
A training program for management staff, with learning areas covering; culture, language services, needs assessment and consumer data, information, multicultural consultations, program design, implementation and evaluation, NESB consumer participation, staff and work practices.
3. Multicultural Planning:
The Multicultural Planning Program was based on the principles set out in the Victorian Ethnic HACC Policy Statement and the HACC National Standards. This program targeted management staff. The Multicultural Planning Training assisted agencies to identify what they were currently doing, to review practice, plan service development and measure outcomes. This training program was developed and resourced by a multicultural planning framework document called the "Cultural Planning Tool" developed by ADEC in 1995. The Multicultural Planning Training addressed 7 principle areas: Access; Cultural Relevance; Consultation; Information; Special Program Needs; Service Co-ordination; and Accountability.
The Project was undertaken in three stages:
Stage I: Involved consulting with the targeted Human Service Regions to find out the specific training and planning needs of HACC service providers, both direct care staff and management staff. Consultation outcomes established comprehensive regional and Statewide profiles of training and planning needs.
Stage II: Involved tailoring and implementing a two day program for each region that focused on training and/or planning needs identified in stage I. Stage II also involved the provision of training and planning initiatives and the provision of information packages for each participant.
Stage III: Involved the evaluation and documentation of project processes, needs were identified and project outcomes were documented.
The Project obtained an overwhelming response with 1,095 service providers (both direct care and management staff) registering their interest in attending the training programs and a total of 167 service providers attending training.
The following 1996 Program statistics show a considerable number of HACC service providers interested in the training program offered yet the Project met only a small percentage of these needs. The following tables show the interest indicated in each of the training sessions run and the corresponding numbers who actually undertook the training
(Please note: No attendances means that the session was not conducted in that region).
d
d
(No attendances means that the session was not conducted in that region).
ASTT Regions
| Region 1 - BARWON S.W. | | Region 5 - LODDON MALLEE |
| Region 2 - GIPPSLAND | | Region 6 - NORTHERN METROP. |
| Region 3 - GRAMPIANS | | Region 7 - SOUTHERN METROP. |
| Region 4 - HUME | | Region 8 - WESTERN METROP. |
d
The Project also identified through its training evaluation tool the interest in further training in specific multicultural areas. For example training requests were registered for:
- how to conduct multicultural consultations,
- designing and implementing culturally relevant programs,
- strategies for selecting a diverse workforce,
- working with small and diverse communities/ recently arrived refugees.
Further, the Project facilitated service providers usage of access and equity resource documents. Three documents produced by ADEC in particular,"Strategies for Access and Equity in HACC CCT", "The HACC Cultural Planning Tool", and the "HACC Cross Cultural Training Manual" all seek to assist HACC services to develop access and equity strategies and activities and to address barriers which affect their service delivery to people of a NESB.
The 1996 Program demonstrated that these resources can be most effectively used in conjunction with a training /resourcing program specifically addressing and supporting their implementation with service providers. Such training provided service providers with the opportunity to explore their own service application of the material contained in the resources as well as linking service providers to activities, communities, and examples of best practice in the field.
The Project findings indicated a strong need to provide multicultural training and planning activities to HACC providers on an ongoing basis.
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ADEC recently completed a project for the Home and Community Care Branch which has specifically sought to identify the current applicability of the Client Information and Referral Record (CIARR) for people of a non English speaking background and to make recommendations on enhancing its usage for this target group.
Aims
The project has specifically undertaken to identify the role of peak ethno-specific agencies and mainstream HACC service providers in the promotion and utilisation of the CIARR and to develop a strategic plan and make recommendations designed to address the issues identified through the project.
The project aims included:
- Reviews of current literature, policies, processes, and procedures relating to the CIARR.
- Developing and understanding the usage of the CIARR by observing CIARR procedures at assessments with NESB consumers.
- Consulting with HACC service providers and ethnic HACC service providers regarding the implementation of CIARR with NESB consumers.
- Consulting NESB consumers who have experienced the CIARR to gain their perspective and understanding of the CIARR.
- Developing best practice examples and processes for the implementation of the CIARR with NESB consumers.
- Developing resources to assist best practice strategies and processes.
An independent research consultant was employed by ADEC to undertake the project. The consultant followed a social research action model which incorporated the collection of subjective data such as service providers' and consumers' opinions, perspectives and experiences. A social action research model also supported and gave flexibility to the project's focus of responding to practical issues currently experienced by consumers and service providers.
The main research tools applied in the project were personal interviews, both face-to-face and over the telephone.
Information from ADEC's ten years of experience in working with people with disabilities and their carers from NESBs, and research on NESB consumers and service provision, was also used as a project information resource.
Methodology
The project was conducted over a five month period from April to August 1996.
The consultant was supported by a project reference group comprising representatives from the Department of Human Services, Local Government and other HACC service providers.
The reference group met on six occasions throughout the project and provided support and advice. ADEC staff also contributed to the development of the projects' resources.
Outcomes
The ADEC CIARR Research Project has been successful in identifying particular areas of concern and highlighting the specific needs relating to the implementation of the CIARR with consumers of NESB. The appropriate implementation of the CIARR with people of NESB is seen as crucial, given the possible impact that the "first point of contact" can have in determining whether a consumer will access a service or not.
The project's consultations with consumers and service providers highlighted the different stages of CIARR implementation in services. This ranged from some services not using the CIARR, to other services who had been using the CIARR for two years. The implications of this for the project were that there was less extensive usage and experience with the CIARR and NESB consumers than originally anticipated, and many services were still dealing with broader CIARR implementation issues.
Service provider consultations
The service provider consultations identified a number of issues and areas of concern that service providers were experiencing with the CIARR and NESB consumers. These issues included:
- gaps in NESB consumer-specific information which enhance appropriate service provision. For example, language dialect and implications of cultural and religious affiliations for service provision were among the gaps reported;
- problems with the forms and booklet only being available in English despite the emphasis of the assessment process being one of partnership between consumer and service and empowerment of consumers;
- difficulties in finding an appropriate communication style that enabled the assessor to complete the CIARR forms as well as maintain appropriate consumer interaction. Some service providers felt that their assessment style had become more formal and bureaucratic with using the CIARR and felt that it was not appropriate for many NESB consumers; and
- explaining the concepts of the CIARR and referral process to NESB consumers, many of whom do not know the service system or have had negative experiences with government information in their homeland.
The service provider interviews also indicated a need for specific NESB-CIARR training or information as most service providers completing the form with NESB consumers had minimal information or training on the CIARR despite the availability of CIARR training and information sessions held by the Department over the last three years.
This finding suggests the need to provide training and information in a variety of formats in order to reach the range of service providers involved in the implementation of the CIARR. To this end the project has recommended a number of training options to address the gap in CIARR training targeting.
The provision of culturally responsive services requires an accurate assessment of the consumers' needs in order to inform the service response. The project identified gaps in the CIARR information in providing sufficient linguistic, social, cultural and religious information to appropriately inform service provision for consumers of a NESB. Given that the CIARR is not likely to undergo any changes in the foreseeable future, project recommendations to ensure appropriate service responses to consumers of a NESB include recommendations for individual services to obtain this information.
The need for a flexible approach to using the CIARR with consumers of a NESB is highlighted in the project findings. Service providers who reported that they did not have any issues with the CIARR and NESB consumers, or had only minimal issues, tended to report applying a flexible approach to using the CIARR.
This flexible approach involved tailoring the CIARR to suit the individual consumers situation which took into consideration the person's cultural, linguistic and social background, and only asking the questions that were appropriate and relevant. This flexible approach was reported by these service providers to be of upmost importance to maintaining an appropriate assessment with the CIARR.
Consumer consultations
Consumer consultations gave some insight into areas of concern. The consumers' concerns were also reported in the service provider consultations and included:
- difficulties in understanding some of the CIARR language and concepts,
- that their CIARR (held in their yellow booklet) was of limited use to them because it was not in their language, and
- that the form was difficult for them to follow.
The main suggestion from consumers for improving the CIARR was that it be translated into NESB consumers languages to make it more useful and appropriate.
The consultant found that further explanation as to the purpose of the CIARR in the interviews helped the consumers understand the purpose and possible uses of the CIARR yellow booklet. With this additional information consumers stated that they would take the booklet to other services if the situation arose.
Outcomes
Under its practical focus of developing strategies to enhance the usage of the CIARR with NESB consumers, the project developed information resources for service providers to address the issues raised in the consultations, and to meet some of the training and information gaps identified.
These resources were also informed by service providers who reported effective implementation of the CIARR with NESB consumers.
These resources are presented in an information kit - the CIARR NESB RESOURCE KIT. The Kit covers a range of strategies and ideas for enhancing the usage of the CIARR with NESB consumers and reinforces the need to approach each assessment with flexibility. The information in the Kit is presented within the context of HACC service guidelines, policies, and standards, and the aims of the CIARR and service access and equity.
The Kit and detailed Report on the CIARR project are both available from ADEC.
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VICTORIA'S CARER INITIATIVES
ADEC Submission to the Victorian Government
strengthening the partnership
ADEC's experience in consulting and working directly with carers, and our research activities in this area clearly highlight the exhaustion and ill-health of non-English speaking carers, the isolation and difficulties that they and their families experience, and the detrimental impact on marital and sibling relationships.
Our experience also highlights that non-English speaking carers of people with disabilities do not make use of available services and programs to support them. Carers have found that many programs do not provide for their language or cultural needs.
These experiences have also been identified in other research reports and have been reported by human service providers.1. The low participation rates of non-English speaking carers within existing programs have also been noted by the Department of Human Services in a number of forums. 2.
A summary of issues identified as impacting on non-English speaking carers include the following:
a) PHYSICAL HEALTH PROBLEMS
Non-English speaking carers related the detrimental affects that the caring role has on their physical health with many reporting exhaustion due to lack of sleep, the heavy physical and social demands placed on them and the fact that they never had a break. Many non-English speaking carers also had responsibility for caring for large families with young children and older parents.
b) SOCIAL ISOLATION
Social isolation has been an issue raised by most non-English speaking carers. They experience isolation and loss of friends due to the difficulties and demands of the caring role. Many carers are not able to go out together as a family and are isolated from their own communities due to attitudes towards disability. The migration experience of many carers has resulted in limited extended family in Australia, compounding their isolation and limiting their supports.
c) LACK OF INFORMATION ABOUT SERVICES, PROGRAMS AND ABOUT DISABILITIES (DIAGNOSIS, TREATMENT AND PROGNOSIS).
Consultations with service providers that have been undertaken by ADEC mirror the responses of carers and family. In particular, service providers identified:
- A lack of translated information on services, their procedures and protocols.
- Problems in the dissemination of available information.
- The absence of bilingual workers in the field.
- Difficulties in accessing interpreters because of financial constraints on agencies and because of a lack of training of staff.
d) LACK OF CULTURALLY APPROPRIATE RESPITE
A key issue for NESB carers is their inability to access available respite due to the factors mentioned above. Carers often identify that they do not make use of respite because of inflexible programs that do not cater for their specific cultural or linguistic needs. Carers have also identified that they have a great need for emergency respite care.
e) LACK OF RECREATIONAL OPPORTUNITIES
Recreation serves as an important component of respite for carers. Recreation has been identified as a key issue for all carers. Few carers that ADEC has been in contact with have participated in any recreational opportunities at all for themselves and/or for the family member with a disability. Ethno specific organisations and mainstream services are not providing appropriate recreational opportunities.
f) RURAL CARERS NEEDS
The issues for rural carers are compounded for non-English speaking carers who are further isolated by caring for a family member with a disability, language barriers, and barriers created due to geographic isolation. Consultations which we have undertaken in rural areas would suggest that a beginning point to address rural needs is the provision of far more multilingual information and a well thought out community education campaign. 3. ADEC Mildura report.
g) INCOME SECURITY
The number of non-English speaking carers on pensions and benefits is significant. Many carers and their spouses do not have employment opportunities due to their need to support the caring undertaken by the family. Many families are burdened by the additional costs that are involved in caring for a family member with a disability and the financial impact this has on the family.
DEVELOPMENT OF A NON-ENGLISH SPEAKING CARERS STRATEGY
Following the work undertaken by ADEC with regard to carers of people with a disability, in particular the research and consultations which have been undertaken with carers and with service providers, the following initiatives were proposed. It was suggested that these initiatives could assist in facilitating access to services, and would further assist in educating and informing carers so that they are better able to care for their family member who has a disability.
1. Expansion of social support programs targeting non-English speaking carers.
ADEC proposes a significant expansion to the number and geographical location of social support groups catering for the needs of non-English speaking carers of people with disabilities. Activities of such groups would include education /information initiatives including the translation and dissemination of information regarding available disability services and issues. The activities should also involve the linkage and introduction of consumers to available services and programs.
Separate ethno specific support groups should be established in the four metropolitan regions of Melbourne.
Proposed Model of Carers Support
The support group model that ADEC proposes includes the employment and resourcing of bi-lingual FACILITATORS who would be involved in the development of groups and their resourcing. The facilitators would undertake activities that lead to the education, empowerment, and independence of group members. It is proposed that these groups operate according to a throughput model, whereby participants will graduate from the group and new members will be attracted over time.
The mutual support group model which is being proposed will be an extremely flexible model that will allow participants to make use of the group for as long as they require, or to come back to the group when they require. It is based on an existing model utilised at ADEC which has been highly successful in the past 3 years of operation.
Outcome objective of this initiative:
- Carers will experience less isolation.
- Carers will be better networked with other carers and with the community.
- Carers will improve access to existing services.
- Carers will obtain increased knowledge of the disability service system and about disabilities through having received information and education about these topics from the support groups.
2. Recreation Access Initiatives.
ADEC has identified in research undertaken in 1994 that non-English speaking carers and non-English speaking people with disabilities are not well represented in existing recreation programs provided by ethno-specific or by mainstream disability services.
In order to address this issue ADEC recommends a Recreation Access Project to work with both NESB and mainstream disability agencies to identify and implement strategies to encourage participation by these two target groups. This Project will need to work collaboratively with recreation, disability, and ethnic organisations and services to develop new programs and assist in their implementation. This Project will also require additional resourcing for the piloting of models of recreation that target specific ethnic communities particularly smaller ethnic communities.
Outcome Objectives:
Such a project will address the recreation/social support needs of non-English speaking carers by increasing their participation in recreation activities provided by ethno-specific organisations.
These projects will facilitate the development of a range of recreation options to be provided by existing services (ie disability mainstream and ethno-specific) which target non-English speaking carers of people with disabilities.
3. Carers Education and Information Initiatives.
ADEC has identified that many carers do not participate in existing programs and services because they do not know that they exist, they are unsure how to access these services or programs, or are unclear about what these programs can offer them. There is also evidence that carers feel disadvantaged because they lack communication skills and knowledge about services and service systems, do not understand processes ie case plan meetings etc and hence opt out. There is a sense that the disabled family member is disadvantaged because the carer cannot advocate on behalf of the family.
Projects should be developed that involve the employment of Education and Information Workers to undertake a range of community education and information strategies with targeted NESB communities over a four year period.
The following strategies and activities are proposed for this project:
Community education strategies including:-
- Developing and providing workshops for carers on communication skills, information on the service system, processes for referral, location and role of services and programs.
- Working with key agencies or sections of disability services to co-ordinate information provision strategies for non-English speaking carers ie. translation of information and marketing to ethnic communities.
Outcome/Objectives:
- Agency information and education strategies will be in place within mainstream services and disability programs targeting non-English speaking carers.
- Workshops and information campaigns will be completed with different ethnic communities and work with other organisations to run these will have been undertaken.
4. Rural Carers Initiative
ADEC has identified that rural carers have a number of barriers which make access to mainstream disability programs and services extremely difficult. Issues impacting on rural carers have been identified as including a lack of information, social and geographical isolation and a lack of service and support infrastructure.
To address the needs of non-English speaking carers living in rural areas, projects should be developed to allow Rural Workers to work with specific rural NESB communities to develop strategies in conjunction with existing disability and other service providers to address consumer needs
Outcome/Objectives:
- Ongoing carer support strategies within identified rural areas with non-English speaking populations ie. carer support group either meeting together or through tele-link.
- Development of carer support groups and activities ie. education and information strategies, networking.
- Piloting of a volunteer carer telephone network. A co-ordinator would support and train a pool of volunteer carers from specific ethnic communities in rural areas who would be able to provide support and information to other carers.
- Carers could also be provided training and information on how to use Telephone Interpreter Services, and how and where to contact ethnic community and statewide support programs.
References
1.Wositzky, K.
The Social Support Needs of Arabic Speaking Carers.
January 1996, Action on Disability Within Ethnic Communities.
Iera, R.
A Report on the Needs of People with Disabilities who are of non-English Speaking Background Living in Mildura and Service Planning Directions. 1994. Action on Disability Within Ethnic Communities.
FECCA.
Caring in a cultural and social context: Arabic speaking, Latin American and Indo Chinese families. FECCA 1994.
Carers Association of Victoria.
Voices Choices and Actions. Care Issues Monograph 1, 1994.
2.Department of Heath and
Community Services.
Ethnic Health Conference, Pre-Conference Consultations, Disability Services, 1995.
3. Iera, R. 1995.
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In early 1995, Cockatoo Community Health Centre had undertaken action research assessing the needs of people of NESB residing in the catchment area serviced by the Centre.
The recommendations of the Report highlighted the :
- under-representation of NESB communities accessing the Health Centre
- the need for better usage of interpreter and translating services
- the need for more knowledge of ethnic communities in the catchment area
- the need for policy and strategic planning for NESB communities in the region, and
- the need for consultation and linkages with ethnic community groups
As a result, ADEC was asked to assist in instigating a process of strategic planning specifically targeting ethnic communities.
Initially, ADEC requested that the Health Centre undertake an ethnic audit assessing existing organisational practices to guide future policy direction and strategy implementation The results indicated a significant need for organisational change.
Two consultations were organised involving the Chief Executive Officer,Committee of Management and a Staff representative.
Initially, ADEC conducted a cross cultural training session highlighting the barriers associated with access as a result of language and culture and proposed a model of change , "a model of ethnic access", incorporating the following organisational objectives
- The service location and contact of the Centre
- Needs assessments and data collation undertaken by staff
- Access to information
- Internal Information Systems
- Culturally Relevant Services
- Appropriate Staff and Work practices
- Strategies for NESB consumer consultation.
Further discussions highlighted the short term (e.g. language maps at reception desk) and long term (e.g. implementation of ADEC ethnic access model) strategies that could be undertaken by the Centre.
The second consultation involved planning the development of effective strategies that could make the service more accessible to NESB consumers and carers.
Having undertaken the ethnic audit the Centre was able to document and analyse gaps within the service and subsequently propose strategies that could improve outcomes for NESB consumers.
As a result of the consultations, the Centre proposed to undertake the following activities:
- Plan the process of change
- Develop a Multicultural Access Policy
- Gradually implement strategies proposed in the ADEC Access Model
- Develop a Working party specifically dealing with NESB consumers and carers
- Improve consultation and linkages with ethnic communities in the region
- Monitor and evaluate the progress six monthly
The process indicated the continued need for organisations to undertake ethnic access audits assessing their level of access to NESB consumers/ carers. More importantly it highlighted the paramount need for organisational change as a process that should be inbuilt into quality service provision and total quality management.
ADEC is available to assist agencies in undertaking strategic planning activities ensuring better access to NESB consumers/carers.
Please contact us on 9383-5566
or fax 9383 5185.
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Mental Health Information Needs of People from Non-English Speaking Background
a project of the cross regional multicultural education working group
Background
The Department of Human Services awarded NESB Access Initiative grants to a number of psychiatric disability support services across metropolitan Melbourne in mid 1996. One of the purposes of the grants was to provide services with resources to produce materials and information on mental health in community languages so that people from non-English speaking backgrounds could have access to information which is not readily available.
The Cross Regional Multicultural Education Working Group, a group of workers working in the psychiatric disability support and clinical sectors with an interest in issues faced by people from NESB, saw the opportunity of stretching the money which had been allocated by generating a process which determined the priorities in information production and which encouraged a collaborative approach in dealing with the issues which arose. It was recognised that there was no point in each funded organisation producing similar information when there are so many competing needs.
It was felt that consultation with services in the sector and ethnic communities was necessary in order to determine what the priorities for materials production were. It was determined that a workshop would be a good way to achieve this.
Process
In order to learn what the information priorities in mental health were for people from NESB, it was firstly necessary to establish what information was already available. To this end, an audit was conducted. Workers from clinical psychiatric services, psychiatric disability support services and ethnic communities were asked to fill in a series of proformas which identified:
a. What information is available in community languages.
b. What information is available in English and is needed in community languages, and,
c. What are the information gaps.
It was requested of participants that these be filled out and returned to the workshop organisers for collation before the workshop. This was to form the basis of a directory of information on mental health available in community languages.
The workshop
The workshop was held on October 14, 1996. Participants were asked to go through the list of information resources which had been compiled as a result of the audit prior to the workshop. This was checked for accuracy and participants were asked to comment on whether the material was current, whether there was any cost associated with accessing it and generally on any aspects which they felt may be noteworthy.
Although the process was a tedious one, workshop participants were able to make a valuable contribution to our knowledge of the quality of information available.
This information is currently being finalised and will be produced as a Directory of Multi-lingual information on Mental Health.
The Directory of Multi-lingual Information on Mental Health
This resource will be available for distribution in early 1997. It includes a list of material available in community languages on mental health as well as the languages that they are available in. The material is divided into a range of categories which include:
- Carers Information
- Conditions (including Depression, Schizophrenia, Bipolar Disorder, Anorexia and Bulimia Nervosa)
- Stigma
- Legal Rights
- Services and
- Treatments
The sources from which these resources are available are recorded as are the costs associated with acquiring these.
Issues Identified at the workshop
The main purpose of the workshop was to identify the priorities for information and materials production. In relation to this, the following were identified.
Information Gaps
The information gaps identified included:
- Translated information on diagnoses. Translated information is needed on mental illness, schizophrenia, bipolar disorder, anxiety, depression eating disorders, stigma, post traumatic stress disorder etc
- Information on services available and where to go for help also needs to be produced. This information is needed in different formats such as on audio tape, video or printed and its promotion in ethnic media (radio and print) and on Channel 31 is required.
- Translated information on service types is needed. For example, an explanation of the role and operation of services such as rehabilitation, outreach, day programs, supported accommodation, case management.
- Strategies to deal with stigma in ethnic communities. This could include Information sessions on ethnic radio which normalise mental illness in an effort to counter stigma.
- Information on medication and side effects for consumers and carers.
- Information and community education on the legal rights of people using mental health services and the changes in the Mental Health Act.
Information Dissemination and Service Marketing
The issue of the inability of organisations to effectively distribute information to ethnic communities even after it had been produced was raised. It was felt that organisations were unprepared for the cost associated with effective service marketing and distribution of information and that there was a need for training within the sector on these issues generally and as they pertain to ethnic communities.
General Comments
- Information produced should focus on the content and not so much on the presentation. The information is more important than glossy brochures.
- Those producing information should take care to ensure that translations make sense. This can be done by preparing material for translation in simple language and with an explanation of concepts normally conveyed by jargon. Also ensure that translations are proof read prior to printing.
- Community education is necessary - General information to the community can counter stigma whilst more specific information can benefit potential service users or carers.
- The quality of translated information was raised as an issue. This could be addressed by having material proof read prior to production.
Where to from here?
The Cross Regional Multicultural Education Working Group continues to work on the issues arising from the workshop and welcome any input from interested people.
Contact
For more information or enquires, do not hesitate to contact Malina Stankovska on 9383 5566.
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During December 1996 ADEC ran a self advocacy training program for Turkish speaking carers currently using ADEC's services.
The training program was held over two half days and was conducted in Turkish , with trainers utilising an interpreter throughout the training. The training was well received by carers in attendance with ADEC planning to run further training for carers from other language groups.
Background
It has long been apparent to ADEC staff that many carers utilising ADEC's individual advocacy services have common concerns and difficulties in advocating for services for themselves in their carer roles and as advocates on behalf of their family members with disabilities.
During 1995 Carers in ADEC's Turkish and Italian social support groups had also expressed their need for more information education and skilling to enable them to better self advocate.
What resulted was a successful submission to the Victorian Multicultural Commission for funding of self advocacy training for carers in both the Italian and Turkish support groups. The Self Advocacy Training for Turkish speaking carers was held in December 1996 with the training for Italian speaking carers proposed for early 1997.
Self Advocacy Training for Turkish Speaking Carers - The content for the training Program was developed following some discussion with the carers themselves regarding their advocacy training needs.
As a result the overall aim of the training was to facilitate empowerment of the training group participants, to enable greater participation in decision-making around their care responsibilities.
Course content aimed to :
- enhance communication skills of participants
- increase knowledge of the broad service system
- increase knowledge of their rights and those of their family members
- increase their knowledge and understanding of relevant and key decision-making contexts including case conferences.
The course was divided across two half days and covered three areas relevant to successful self advocacy.
These included:
Personal - This component included developing an understanding of oneself particularly ones emotions /feelings about the issues
Communication - Key points covered included understanding the point of view of the others involved in the issues, communication skills, (covering also effective use of interpreters for the carer/consumer) and negotiation skills.
Taking Action - This was a more information based component of the Program providing an overview of the service system and an understanding of the responsibilities of relevant players and carer/consumer rights and responsibilities within this system. The experiences of the participants were used to consider alternative approaches to taking action on specific advocacy issues.
Outcomes:
The responses from the carers both in their level of participation and verbal evaluation of the training indicated that the training was a great success. Follow up evaluation is to be held in early 1997.
The use of an interpreter throughout the proceedings, and the decision to have ethno-specific training was found to enhance the success of the training and to enable far greater participation by many carers many of whom have limited English skills.
Overall the Program provided a successful pilot for future carer self advocacy training. As part of ADEC's carer strategy, the agency is committed to providing further language -specific self advocacy training for carers.
Depending on the future success of the training and on-going identified need, ADEC is also considering the development of a Carer Self Advocacy Training Resource Kit and Training Manual.
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TRAINING IN MILDURA
MORE TRAINING NEEDED IN THE COUNTRY
In conjunction with Mallee Leisure Access, ADEC conducted a full day cross-cultural communication course in Mildura, for professionals in the Mallee region.
The session was very well attended by a wide cross-section of people working in the various community services in North-East Victoria. It was the first time most had received formal training in the area of working with people from non-English speaking backgrounds, thus the training proved to be challenging. Participants actively took part in the group discussions and the role plays.
The Mildura experience highlighted to ADEC the need to organise training sessions in country Victoria. It is envisaged that we will be making contact with regional centres with a view to promote these courses.
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